Rett Syndrome Parents and Children to Talk To U.S. Congress

Added: (Mon Mar 27 2006)

Pressbox (Press Release) - West Hills, CA (KGWEB) March 27, 2006

In the next few days, parents and their children who have Rett Syndrome will be visiting the United States Congress to try to get more funding for research into this disease. Rett Syndrome affects one out of approximately 15,000 girls. Boys born with the Rett gene die at birth.

Girls with Rett Syndrome are usually diagnosed with general autism and they do not receive the care they need to function properly in society.

Funding is limited as well and in some states, non-existant. The purpose of the families is to raise awareness for Rett Syndrome and get the word out that more work needs to be done to find a cure for Rett Syndrome.

The information was provided by Kim Greenblatt.

http://www.yourdaughterhasretts.com/

Kim Isaac Greenblatt is the author of "Your Daughter Has Been Diagnosed With Rett Syndrome. Part of the profits from the sale of his book go to Rett Syndrome research. He is the father of a girl who has Rett Syndrome named Arianna.

For more information visit:

http://www.yourdaughterhasretts.com/

The book's lessons apply to parents, caregivers, educators, librarians and medical professionals who are interested in learing how to cope with a special needs diagnosis. The author is available for interviews and television appearances.

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